2:06am

Well, I took a bunch of notes today about all the things I wanted to
talk about. Sadly at 2am I’m just not thinking clearly. I asked for my SIL’s help today working on the website, but also something a bit more special. I wanted to send out a picture and a small paragraph that would grab their attention!

I wanted to post it on every single facebok friend/business I know on facbook…. and boy oh boy did that take awhile. Not only will it eventually lead them back to my website, it will
also make it clear to them that no one can hide from cancer. To please keep all appointments for mammos etc., but also to check on your own every month after. If I didn’t do this…it would have cost me my life.

I promise after more sleep I will have more to say. I will end with what I sent to everyone I care about:
———————————————

I am 32 years old and found a lump on my breast during a self-exam. This was only months after a routine doctors office breast exam showed nothing. Please remind the ones you love to do their self-exams every single month.I believe it saved my life! Here is a link to follow my journey :

https://takingitfromthetop.com/

So “PLEASE”share this on your timeline to remind all the wonderful people in your life to self-check. Awareness!

20130204-021944.jpg

2am

So much today, but it is 2am and I have church tomorrow. Will give a long update then:) lots of love —

20130203-013025.jpg

It’s a family affair…or is it?

So yesterday was another hard day. I did get out of the house which is good. I helped take Sophie to school and everyone was so happy to see me up and about after only a week after surgery. Then a good friend watched Sophie and allowed my mom and I to just lay down and watch tv and hold hands for awhile. It was wonderful. 🙂

Later on,I had a doctors appt at 4:00. My husband came with me and all I kept thinking about was getting weighed. Not really just my weight in general…but what my weight is without breasts. How much did they really weigh?? Sometimes when your jogging you could swear to to God they weighed 30lbs a piece 😉 lol. I think he was upset I made him stand in the corner, but that moment was about me… not him. The office visit went well. I told them I had yet to look at any of my scars and they were respectful of that. They were curious why, and all I could say is “I just wasn’t ready yet.”

I knew the triple negative breast cancer was the shitty one” to get, and my surgeon agreed. But, what I didn’t know was that a big reason the reocurrance is so high with triple negative is because of the lymph nodes coming back positive. Since none of mine did, that was a great sign. Maybe even a Silver Lining of some sorts 🙂

The appt. itself was hard though. It was time. Time for the bandages to come all off and well “it is, what it is.” No take Backs.”

I disrobed infront of my husband, put the cape on…and waited. The surgeon came in, said how great I healed, took out the drains and said he’d see me in a few weeks. I could shower and even take a bath.Overall it was good new…right?

When John and I got home that night and things had settled we started to fight. I’m not sure about what, and I doubt he knows either.

This takes me back to my title. “Is cancer a family affair?” Does your whole family get cancer?

We sat in a room just 16 days prior and heard the words “Jen has cancer .” Those words live inside my heart forever. And although my husband, and kids,and mom and dad adore me and love me….those words didn’t include their names. Just mine. That was scary.

It’s never “we need a root canal.”
Or “we sprained (jm I fixed my grammar you spelling nazi) our ankle today.” Or hey “we broke our penis.” Or earlier in the kitchen while cooking dinner “we sliced our finger.” But, for some reason cancer seems like this one “thing” we all go through together.

So, last night as John and I are both frustrated at each other, it all
boiled down to one thing….maybe we were both right. My cancer will be a battle we tackle as a family on some days, and on some days I will tackle it alone.And, I think that’s okay.

I know he means well, and anyone that truly loves someone else
would do the same. But, sadly he can’t be me. He can’t feel every feeling I have. He can’t experience every tear I shed.

I sat in the bath last night for the first time since my surgery. I looked down as I was wearing a tank top in the water with tears flowing down my face. When would I ever feel okay to take that tank top off and be okay with what I saw. Who knows? When I got out and changed into my pajamas I noticed one breast poked out of my shirt weird. I made a
joke that it looked like a torpedo tit. lol

In those momemts….they didn’t feel like family affairs. I doubt anyone would say they were. But, I know there will be plenty that will be. I looked into Johns eyes and told him sometimes I just need someone to shut their mouth and hold my hand…he agreed . The answer is, there are no answers. I have no clue what I am doing, or how it will impact the life of me and the ones I love. I trust in God, and the direction he has for me.

20130201-173042.jpg

The Good, the Bad, and the Ugly

Well, today I am in pain…again. Jeez I had both knockers taken off, so that’s bound to happen. I did get some really good news though! yeah!

FYI-when nurses call and say they have results its a good thing. They are not the ones to tell you the bad stuff. If they say “the doctor wants to see you at 4:30” …. uhhh ohh. You are in deep doo doo.

So, my favorite Nurse Krisitn called and said my pathology results were in. Please remember a few months ago I had to google what “pathology” even meant 🙂 haha . Since I left the hospital it felt as though my armpit was on fire. Today I found out why 🙂 15 lymph nodes were taken out and all came back negative.!!!! My oncologist said if it came back negative I wouldn’t need Radiation….so that’s a great thing!

I also showed no margins ( any areas where cancer cells may remain) after the mastectomy. The were there after the lumpectomy, but now they are gone! I also got some new meds, so that helps too tonight.

As I say all this I should have a huge smile on my face…. but I
don’t. Today was bandage change day. I stood there naked infront of my husband with my hands out holding my drains till it was all over. It was horrible, every single minute of it. Whatever use to be there , under my camisole… no longer was.

Just another day of living with cancer. The good, the bad, and the ugly.

oh yes something good for John…. I don’t need Radiation! yeah 🙂

Just because I need a laugh

20130129-223541.jpg

Cancer Sucks!!!!

So, let’s just get this out in the open…Cancer Sucks. I have a pretty good feeling I won’t be asked to speak in public, or write any articles regarding this. I am pretty much a loose canon.

Today I was uncomfortable. I have tubes, and drains , and bags, and blood, anything else you can think of.
On top of all this I apparently made it on God’s naughtly list and it was decided that I wasn’t nearly in enough agony and had to throw into the mix my monthly period. Just Freakin Great! Like I don’t have enough on my plate, or my self esteem wasn’t low enough. Wonderful.

I did clean up a bit today and that made me feel better ( John that’s about all you’ll get this time around) As days progress I feel like I am already missing things. What did Sophie have as a snack at lunch, or how did Kaylees class go? I have no idea. I am so wrapped up with cancer I feel like everything else will suffer.

For those who don’t me, I am a stay at home mom. Being a mom is my job and that’s what I do. I know everything about everything when it comes to my kids because thats my job to do. Now, what the hell am I? A stay at home
mom who doesn’t even do that job well now. I am sick, and I need to get better so I can go back to doing what I do best….Being a mom.

I could go on and on about how I feel about my husband, but it will probably embarress him. Let’s just say…things have changed. I know I can’t do the things I normally could, and even when I can, he will be looking at someone different.

11 years ago he walked down the isle and married a young girl with short brown hair, spunk, and size D breasts. Yes, I know that is not why he married me, but “it” was me. I’m not sure what I am now. A soon to be bald girl, covererd in scars with no breasts and maybe no reproductive organs either. My husband is wonderful and I know this is not how he feels. This is my blog, and my chance to speak my peace and how I feel.

There are two parts to cancer that I have realized. The part where you are trying to save your life, and the part where you react to what has been done to your body to accomplish the first.

Thursday I have an appt. with my surgeon at 4:00. Most wouldn’t think
twice, but I know damn well
any appt. that late in the day means they want the surgeon to see
you in person. Well, the last two times I had horrible news, and the last good news I had was calling in on the phone. Anyhow, I’ll worry anyway there is no real reason to stop that even if I wanted to.

It has been a long emotional day for me. I know there will be many more to come. John makes me say something good, so I will:

I texted my surgeons personal cell phone because I was in pain tonight and he called me 10 minutes later to help.I know this may be a smaller hospital we have here, but that kind of care is hard to find. I am proud to have him watch over me through this process.

Time for Bed

Today was horrible. It was exhausting and I just want it to be over with. Good night friends and family. 🙂

Positive- I Iove my mom for all she has done to help me through this on a daily basis. 🙂

It happened:

It’s here. I’m overwhelmed. My mom has been my right hand gal and I couldn’t ask for better help. She is everything to me, and she is the one who will help me the most through this. How lucky am I?

Everyone wants to help, and I really just don’t know how. Most of this stems from the fact that I am still in shock.

Maybe even in denial. Why do I need help, I’m 32? I should be healthy.

How is it that a few weeks ago I was bitching about going to some stupid Cancer Gala (I jokingly call it the Senior Citizen Prom) 🙂 the hospital was supporting, and now I am supposed to go… but as a Cancer patient myself?

It just reminds you that everyday is not a given. You are not guaranteed this life you think you deserve, but a life you are given and learn to be thankful for. The small things.

I got a call a bit ago and I am again filled with fear. 4:00 Thursday my surgeon want to see me. Now for all those who don’t know this routine…getting called into the office is usually not a good thing. Now, granted I have bandages, drains, tubes, etc. that need checked on…but I have some major results I’m still waiting on. Getting called in the office, especially a later appt. time is never good.

Growing up, when a customer… or boss… etc. would call my dad the first thing he’d always say is:

“Jen, they sure as hell aren’t calling to tell me what a great job I’m doing.”

The same applies to my situation.

Sinking in…

So, here I am sitting in bed thinking about all the different things people have, and will continue to do for me. I should be happy, but I’m not. I feel bad. I feel bad that because of me they’re going out of their way to buy flowers to send cards to make meals, to help with my kids and just help me out in general. I know that they want to do all this for me, but it still makes me feel a bit guilty.

How in the world am I going to make it up to everybody? How can I ever tell them thank you enough times? I have always been a pretty self-sufficient person that can do most things on my own. And if I can’t…I will sure as hell try. But cancer, cancer is something that I can’t do all by myself and I’m just now realizing it. Will I miss things? Yes, I am sick and can’t do everything I did before. Does that make me sad? Yes.

Cancer affects me, my kids, my husband, my family, my church, my friends, my co-workers, my neighbors and everybody inbetween.

I wish this would all just go away. But, as I sit here with this cold icepack lying on my flat chest I realize I am way past wishes.

Thank you to everyone who will be a part of my journey…I love you all.